Sunday, August 25, 2013

Gearing up for Round 3


   The past weeks have been filled with busy schedules, recovery from my first cold of the school year, back to school excitement, the threat of West Nile lingering, and preparing for a hot date this Friday!


    I knew that with school starting our lives would go from relaxed and a bit lazy, to hold onto your hats...or wig for me! As Brent and I headed back to work, I had some tough times...introducing myself to the staff and stating one bucket list item proved much more difficult than it would seem, but bucket lists have become all too important and real in my life.  Honestly, I know some things I want to do, but until you have to commit to them and then the realization that you have to make them happen...very real!  Scary real! Up until this point, I believe that all of the prayers that I have said, that friends have said, that all of you have said on my behalf, have truly protected me from the fear of reality from this nasty sickness.  After my diagnosis, that fear has subsided.  Although my feelings and emotions completely took over at the staff meeting, it put life into perspective.  It's really precious and each day counts.  One item on my bucket list that I shared was to attend the CMA Awards with the love of my life...that's Brent, just in case you were wondering!  It will happen, that I know!  Not sure when, but sooner rather than later, that's for sure!  And, I can't wait!
 


    So we are all back to school, which begins my daily school talk conversations with my kids.  Payton started 2nd grade and my little man started Kindergarten this year, which is beyond exciting...my kids are back in one building=one pick-up and drop-off spot...hallelujah!  I was chatting with Ry about his new friends and who he played with at recess.  His reply was, " I played with Network."  Yes, you just read that right, no typo!  Of course, my reply was, "his name is Network???"  You never know this day and age.  So I followed up with, "well, who else did you play with?"  "Spiky hair!" he said. At this point in the conversation I was nearly rolling on the floor.  So me being the resourceful type, I went to our class list that was sent in the back to school letter.  Let me reassure you, there is no child named Network, but there is a little friend named Edward. I thought I was going to die laughing..forget cancer!  I still have not figured out Spiky Hair, but I will get to the bottom of it very soon. Too stinkin' funny, unless you know my husband...Rylan is an exact replication with the exception of my dimple...I'm pretty sure that's the only contribution I had.
    With school comes the threat of sickness and unfortunately it already got me good.  I received my first gift of germs on Day 6 of Round 2.  I have no idea where I picked it up, but the bottom line is I quickly realized just how weak my immune system is.  A simple cold without antibiotics was annihilating.  I got into my doctor as soon as possible and got some relief. My new meds had their own set of side effects...add those to what I already am up against and you start to feel defeated...that is until they start to work and then I felt like a whole new woman...watch out world!




As I started the new school year, I realized how important it would be for me to wash my hands like a person that is OCD about germs...wait that hasn't really changed too much from before my diagnosis.  I struggle with anxiety around illness, go figure!  My first grade team has been beyond understanding about my germaphobe ways and has committed to having the entire grade level wash hands after lunch...such a huge relief!    I cannot express in words my gratitude for this amazing group of women.  Not only is work a needed dose of adult humor, but it's keeping the time ticking to get through my last two rounds as quickly as possible.  Brent and I also found that going back to work meant that we would be surrounded by our amazing and supportive staff and community.  Zach has been our home for the past 11 years and we truly couldn't have made it to this point in our journey without them.  Whether it was a simple hug from a parent, a meal brought to our house, a card from former Zach families or staff being there for Brent and I every step of the way, we can't thank you enough.


    As for the little people in my classroom, they are incredible.  On the first day of school my class got to interview me, which was a great opportunity for me to inform them of my illness...and my baldness.  If I could do it again, I would definitely video tape that discussion.  The kids were so incredibly sweet and astonished by the thought that I had no hair.  Some of them were over eager to see my bald head, while others were more reluctant.  I'm not sure if they understood that when my wig was removed, there was skin..not brains.  That's my first grade thinking for you...I love this age!  I had my back to school night and managed to share a quick version of my story...get this, without crying!  I know, it was so exciting! I think I told my parents how proud Brent would be of me 4 times in less than an hour.  My apologies for my redundancy, but it was a major accomplishment.  The crying is so embarrassing. I know it is acceptable, but I'm not a cute cryer...nobody wants to share that with a large group of people.


    The next hurdle we have been confronted with is the vile threat of West Nile virus that is being spread by one of my worst enemies, mosquitos.  They have loved me since I can remember.  Of course, I have been more cautious with my anxiety ridden belief in protection from illness, but when your surgeon makes a special visit to your back to school night to give you a warning, it is a little alarming.  I left feeling so incredibly lucky to have an amazing doctor caring for me, but even more important, I made a plan on how to keep my family and I safe from the little boogers.  Mosquitos beware!


    In the last couple of weeks, I experienced many changes in my hair.  Originally, I was told by my doctors not to cut my hair shorter than 3/4 inch.  So I followed the orders...take note, I did NOT love it...I felt a little insecure about how I looked.  Then I got to a point that my hair wasn't really falling out anymore, which left me with a fuzzy buzz cut of hair scarcely scattered across my scalp.  Finally, I was to the point that I could shave it to give me more of a bald look, and we did it.  Thank goodness!  Since I shaved my head, I feel much more confident and I have enjoyed my reflection in the mirror a little more. Along with the fact that my showers are much quicker.... sometimes I stand there and think there has to be something else that I need to do. I snapped some fun photos of my wigs and royal baldness along with my family...super funny!


        
As this week approaches, I have my third round of chemotherapy on Wednesday (Brent is going to Blockbuster today to get us a movie to watch because daytime tv is horrid...except for Ellen) and a hot date with the two men in my life... Brent and Keith. That's right, we have tickets to Keith Urban at Red Rocks on Friday.  He is my favorite...I love watching him rock out on the guitar...or maybe I just love watching him...he is handsome.  Sending some love to my Aussie friend from "down under" and thanking her for sharing such an incredible entertainer with the world. Friday can't get here soon enough! 


5 comments:

  1. amy, i loved this post...i laughed out loud a few times. "network" got me and the standing in the shower trying to think of things to do. you're amazing friend...hope round three is easy on you. and enjoy the concert on friday...he's coming here at the end of september...problem is, my husband won't take me. continued prayers for you!

    ~jess

    ReplyDelete
  2. Every time I see your "Road to Awesome" posts, I just want to tell you that you are already awesome!!! ;) We are still pulling for you every step of the way and miss you this year! ~Melanie and Ryan Fisher

    ReplyDelete
  3. Thinking of you today and saying extra prayers. I agree with Mel... you are already awesome. :)
    Love to you and your family!
    -Krystal

    ReplyDelete
  4. Tracked you down to tell you that I saw you at the Keith Urban concert at Red Rocks. I have been to many of his concerts and you made me do something I've never done at his concert, I cried! What a special moment for you and for all of us. You were beaming and we were all happy for you, but then you threw off that wig and we all just cheered. Keith's reaction just showed what a sweet soul he is and you have become quite an inspiration! Thank you for your joy! Julie Byrnes

    ReplyDelete
  5. Amy - I sat next to you at the Kieth Urban concert the other night - what a wonderful thing your husband and Kieth Urban did to get you on stage - you were so full of energy and happiness - it made me cry! We were in row 20 with you, and were so happy to see you get moved up to a great seat - fun for you in this hard time in life. I have pictures of you on the stage, send me an email address at lipwalz@comcast.net and I will send you pictures. Best wishes in your fight - you will win this, hang in there lady! Barbara Walz

    ReplyDelete